Face transplant patients Where are they now.docx
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FacetransplantpatientsWherearetheynow
Facetransplantpatientswherearetheynow?
(CNN)--Since2008,theUnitedStateshasseenseverallandmarksurgeriesinfacetransplantation,givingpeoplewithseverelydeformedfacesnewlivesthroughpartiallyortotallydifferentfacesfromdonors.
Receivinganewfaceisanythingbuteasy.Thesurgeryrequireslonghourswithmanymedicalspecialistscollaboratingtomakeithappen.Thepatientthenhastoadjusttothenewface,biologicallyandpsychologically.
Thereisacomplexrehabilitationprocesswherethepatientlearnshowtoeat,speakandmakefacialexpressionsagain,saidDr.MariaSiemionow,directorofplasticsurgeryresearchattheClevelandClinic.
"Thesurgicalprocedureitselfoftransplantisrelativelystandard,"Siemionowsaid."Themajorproblemistheselectionofthecandidate--whoisandwhoisnotthefacetransplantcandidate."
Forinstance,doctorsattheClevelandClinicwouldnotconsidersomeonewhoistotallyblindbecauseoneoftherequirementsistobeabletoexerciseone'sfaceinfrontofamirror,"tomakethefaceadjustedtothebrain,"shesaidaboutthisstillemergingfieldofsurgery.
HerearethemajorpubliclyreportedcasesoffacialtransplantsintheU.S.:
ConnieCulp
Surgery:
December2008
ConnieCulpreceivedthefirstnear-totalfacetransplantintheU.S.Shewasinjuredbyabulletin2004whenherhusbandshother.Culpwasleftpartiallyblind,unabletosmellandspeak,anddependentonasurgicalopeninginhernecktobreathe.(Theworld'sfirstfull-facetransplantwasdoneinSpainin2010.)
A22-houroperationattheClevelandClinicgavehermostofanewfacefromadonor:
AnnaKasperofLakewood,Ohio.
CulpmetthefamilyofthedonorinDecember2010.Shesaidaroundthesametimethatshewashappywiththetransformation.
"Icansmellnow,"shetoldCNNin2010."Icaneatsteak,Icaneatalmostanysolidfoods--soit'sallgettingbetter."
Siemionow,wholedthesurgery,saidThursdaydoctorsatthehospitalhavebeenseeingCulponamonthlybasissincethetransplant.ShedescribedCulpas"fullyintegratedbackinhercommunity."Sheis"ahappygrandmother"withaboyfriend,andsheis"veryjoyful."
Culp,now49,isabletosmile,frownandtalk,andherspeechiseasilyunderstood,Siemionowsaid.Before,Culpdidnothaveanose;now,shecanbreathethroughit.ResearchershavedeterminedthatCulp'sbrainacceptsthenewface,basedonactivityinkeybrainareas.
Sheisanadvocateoforgandonationandtravelstodeliverspeechesaboutherexperience.
"She'saverypowerfulpersonalitytoactuallyshareherexperiencetohelpothers,"Siemionowsaid.
JamesMaki
Surgery:
April2009
JamesMakidestroyedtheentirecoreofhisfacewhenhefellontotheelectrifiedthirdrailataBostonsubwaystationonJune30,2005.
Healsosufferedsevereburnsonhisarmsandhands.
Hisbreathingwasimpaired,andhecouldn'tspeakcoherently.Eatingwasalsoimpossible;hewasfedthroughatubeinhisstomach.
Ateamofsurgeonsandotherspecialistsworkedfor17hoursatBoston'sBrighamandWomen'sHospitaltogivehimanewfacefromadonor.Maki,whoworedenturesbeforetheaccident,alsogotnewteethduringtheoperation.Buttheteethdidn'ttakeandeventuallybegantobreak.
He'snowintheprocessofgettingeightfalseteethimplantedintohismouth,andhe'llhaveanewsetofdentures,too.
"I'mgoingtohaveallmyteeth,"Maki,63,saidThursday."I'mlookingforwardtoeatingalotofthings--likeIhavetoeatstuffthat'sreallysoft.OnceIgettheteethin,Icaneatwhatever.Cashews.WhateverIlike."
Hesayshecan'twaittoeatarib-eyesteak.
Makiisalsomakingfacialexpressionsagain.Hesayshehashisgooddaysandbaddays.He'stakenupthegameofbridgeathislocalseniorcenter.
DallasWiens
Surgery:
March2011
DallasWiensunderwentthefirstfullfacialtransplantintheUnitedStates.WhenWienswaspaintinghischurchasavolunteerinNovember2008,hisheadgottooclosetoahigh-voltagepowerline.Helostalmosthisentirefacefromtheburns.
DoctorskeptWiensinamedicallyinducedcomafor90days.InMarch2011,hereceivedanewfaceina15-hourprocedureatBrighamandWomen'sHospital.
"WhenIwokeup,andIwasabletofeelIhadfeaturesagain--eyesandanoseandamouth--Ievensaidoutloudthatthiscouldnotbemedicallypossible,"WienssaidinMay2011."ButhereIamtoday."
WiensrecentlymarriedJamieNash,awomanwhosufferedburnsonmorethan70%ofherbodyafteracarcrash.
"Ourloveisdeepandstrong,andtogetherwewillachievegreatness,"NashwroteontheJamieNashTXTL8RFoundationwebsite.
MitchHunter
Surgery:
April2011
MitchHuntersufferedsignificantinjuriesina2001caraccident,inwhichhereceivedasevereshockfromahigh-voltageelectricalwire.
TheIndianamanwasthesecondfull-facetransplantrecipientintheUnitedStates.
A14-hoursurgerygaveHunteranose,eyelidsandfacialanimationmusclesandnerves,BrighamandWomen'sHospitalsaid.
Inmostofhisface,Hunternowhasnear-normalsensation.Hisspeechhascontinuedtoimprove.
"Mitchreportsthatheisveryhappywithboththeaestheticandthefunctionaloutcomesofhisoperation,andenjoysspendingasmuchtimeaspossiblewithhisfamilyandfriends,"thehospitalsaidinastatement."Herecentlyhastakenonactivepursuits,includingrunningandtrainingforenduranceraces.HealsohasajobinhishomestateofIndianaandisplanningtoobtainadegreeininformationsystems."
CharlaNash
Surgery:
May2011
CharlaNashwasmauledbyafriend'schimpanzee,leavingherwithoutanose,eyelids,lipsorhands.
BrighamandWomen'sHospitalsurgeonsperformedafullfacialtransplantina20-hourprocedure.
Initially,shealsoreceivedtwonewhandsthroughtransplantationaswell.Afewdayslater,though,Nashbecamesick,andthehandswereremoved.
Thefirstpost-surgerypicturesofherwerereleasedinAugust2011.
Shesaidatthattime:
"IwillnowbeabletodothingsIoncetookforgranted...Iwillhavelipsandwillspeakclearlyonceagain.Iwillbeabletokissandhuglovedones.Iamtremendouslygratefultothedonorandherfamily."
RichardLeeNorris
Surgery:
March2012
RichardNorrisfromVirginiawasagunaccidentin1997thattookawaymuchofhisupperandlowerjaws,inadditiontolipsandnose.Heneededatracheatubetobreathe.Heworeasurgicalmaskfor15years,hidinghisdeformitiesfromtheworld.
AteamofspecialistsattheUniversityofMarylandMedicalCenterperformedtheprocedure,whichlasted36hours.Thesurgeryinvolvedreplacingbothjaws,aswellastongue,andskinandunderlyingnerveandmuscletissue,andanentiresetofteeth.Essentially,hisentirefacewasreplacedexceptforhiseyesandthebackremnantofhisthroat.
DoctorssaidNorris'wasthemostextensivesurgeryofitskind.
NorrissaidinastatementinOctober,"Iamdoingwell.Ispendalotofmytimefishingandworkingonmygolfgame.Iamalsoenjoyingtimewithmyfamilyandfriends."
The37-year-oldspokeataUniversityofMarylandfundraisinggalaonSaturday,hisfirstpublicappearancesincethesurgery,accordingtheahospitalspokesman.
"Thankyoufortheyearsspentpreparingtogivemeanewlife,"hesaid,accordingtoCNNaffiliateWJZ.
Inmemoryofthedeceaseddonor,hesaid,"Thankyou,Joshua.Wewillalwaysbegratefultoyouandyourfamilyforthisgiftoflife."
CarmenBlandinTarleton
Surgery:
February2013
CarmenBlandinTarletonbecamedisfiguredafterherestrangedhusbanddousedherwithindustrial-strengthlye.Thelyeburnedmorethan80%ofherbody,andtheburnswentallthewaythroughherskin.Childrenwouldrunawayfromherbecauseofherappearance.
TarletonwasapprovedforafullfacialtransplantinDecember2011,andittook14monthstofindadonor.Thetransplantsurgery,performedbyspecialistsatBrighamandWomen'sHospital,took15hours.
Today,Tarletoniscompletelyblindinoneeyeandpartiallyblindintheother,butsheisstillabletoliveonherowninherapartmentinVermont.
ShetoldCNNsheespeciallylooksforwardtogainingthestrengthandcoordinationtokissthemanshecalls"theloveofmylife."
"Ican'tpuckerandfeelyet,"shesaid."ButIamlookingforwardtothatday.Iknowthatdaywillcome."